Welcome

When I created this blog, I was "getting on" in my early sixties, hence the blog name. However, my adult daughter's eating disorder and co-occurring emotional dysregulation disorder and other co-morbidities - ongoing for about 33 years - became and was our focus as we attempted to help her get into recovery. By learning about, reflecting on, reading about, attending conferences and writing about eating and brain disorders, I created a place to blog what I've learned. I hope this blog will be of use to others, especially families of and adult sufferers themselves to help them get into recovery. I update posts from time and the update date will be present at the top of the post.

Sadly, my daughter passed away in early October 2021 mainly because her body became so malnourished that she was immunocompromised, contracted a severe infection that was not properly addressed during an earlier hospital stay the month before, and developed an overwhelming non-covid pneumonia following surgery to save her life. I believe she should have been able to receive palliative care but Arizona, our country, and even the professionals trained in the treatment of eating disorders, particularly anorexia, are not "there" yet. I address the issue of palliative care in a recent post below, initially written in November 2021. I am not a certified eating disorder specialist. I am an Expert by Experience and college-educated with a BA in Community Work with an additional certificate in a one-year program in Business Administration from the same institution.

I am passionate about all of this because, as Shakespeare wrote in The Taming of the Shrew, Act 4, Scene 3: "My tongue will tell the anger [and sadness] of my heart or else my heart, concealing it, will break. And, rather than it shall, I will be free even to the uttermost, as I please in words."[2016]

Travel Guide

If you're new to my blog, I recommend you begin on the right side and take a look at the "Of Note" offerings. Read Dr. Cynthia Bulik's recent published interview (5/4/22) "Rethinking Eating Disorders" if you want to print an easy-to-understand professional's expert opinion about anorexia for your family doctor or the therapist. [Early intervention is absolutely critical. For those whose eating disorder is categorized as entrenched or severe and enduring, read the editorial comment by Stephen Touyz and Philipa Hay for a new approach about treatment. It is possible for your loved one to recover! I have also attached a link here for additional papers on the subject of severe and entrenched eating disorders. If you are a family member or friend of an adult with an eating disorder and have been at this for awhile, I refer you to the posts within the title "Adult Eating Disorders and Recovery Tools" found in the Index on the right hand side of this site. As well, in the "Of Note" section take a look at those posts with an asterisk. If you're a parent and need support, look for posts in the Index about parent support or parent toolbox. In my opinion, the best book to buy, to refer to constantly and to share with members of the medical/psychiatric profession is "Sick Enough: A Guide to the Medical Complications of Eating Disorders" by Jennifer L. Gaudiani MD, CEDS, FAED. "Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture." I recommend two groups who will support you on your journey - F.E.A.S.T and the National Alliance for Eating Disorders. Both maintain websites and Facebook private groups.

Saturday, October 30, 2010

Changing one's perception

I experienced an epiphany this morning.  To digress for a moment, I remember the first time I heard that word not in a religious context.  My daughter made a remark using the word and I had to ask her what she meant.  What a great word it is!

In the same way, what I heard this morning felt like my mind was opening on a new understanding of an ongoing issue.   The person I spoke with used words I had not heard before even though she was saying the same thing that others had been saying to me for several years.

Specifically, she shared with me that she realized she could not be her loved one's (who has been diagnosed with Borderline Personality Disorder) energy source anymore.

I've heard others remark that their loved ones diagnosed with BPD drain them dry.  I’ve heard parents say that their loved one actually sucks them dry, like a vampire.  I’d actually never experienced that in such a vivid negative fashion so I hadn’t understood what they were talking about.  I had understood the concept of draining me because so much of what I did or said or advocated for didn’t seem to make much difference and I became exhausted in the process.
 
 In other words, I had always thought of it in the direction of one’s loved one taking energy.  But what I finally figured out this morning is that this disorder causes the person to seek out energy in others.  And, in doing so, the person does not turn to their own energy as a source of growth.  To grow in autonomy and independence, the person must use tools such as dialectical behavioral therapy and mindfulness to remain in the present and to learn how to think differently and therefore behave differently.  To learn to take responsibility. 

This is a tall order for a loved one who has behaved in a certain way for a very long time and relied on others to solve his/her problems.  It’s a tall order for that person who has been thinking a certain way for a very long time.    It’s a shift for me, too, to view this differently.  But I am coming to see that by being an energy source, I am serving as a battery (that can be drained) while the person is not utilizing their own resources to learn how to deal.

I will continue to be an advocate and I will continue to be there detached with love, but now I understand in a much deeper sense how I need to behave differently, too.

Friday, October 29, 2010

If you are the parent of an adult loved one with an eating disorder

3/27/2019 - updated

It's difficult being a parent or a spouse/family member or even a friend of an adult with an eating disorder. On the one hand one wants to foster/support their independence and autonomy and on the other, particularly if they are in the thick of their disease, they often lack the very insight that they need to get well.  (The technical name for this lack of insight is anosognosia.)   So every decision needs to be weighed carefully. 

The following information (that I have learned over time) and questions will serve to guide readers and may provide the parent of an adult and others with some thoughts/strategies.  This piece is specifically written for parents of an adult but many of the points as well as those in the link to the concept of a team are relevant to other supporters/carers.   


 First remind yourself all the time that s/he is an adult. S/he is no longer a child (even if s/he occasionally acts like one). S/he needs compassionate family members who will talk to him/her and treat him/her like a responsible grownup who can go on to or return to independent living once s/he has been stabilized and well-nourished.

For your family member to engage, s/he also needs to feel that s/he is being listened to. A wonderful resource is called LEAP, an acronym for a communication/listening method that is very effective.  Dr. Xavier Amador first wrote about this communication method in his book I Am Not SIck I Don't Need Help:  How to Help Someone with Mental Illness Accept Treatment.  For more information about Dr. Amador, the method, and the book click here.

Immediate resources:  my family member and her doctor have read this recent publication cover to cover and now other doctors in the practice are reviewing it:  Sick Enough: A Guide to the Medical Complications of Eating Disorders by Jennifer L. Gaudiani, MD, CEDS, FAED.  I and other adults have recovered from a long-term eating disorder.  I recommend you read Tabitha Farrar's recent publication:  Rehabilitate, Rewire, Recover! - Anorexia recovery for the determined adult.


As an adult (rather than, e.g. as a late teen or one in their early 20's, still in college and dependent financially) has your son or daughter retreated to your home from their living situation before? If so, what happened? How can you, if asked, provide that support again?  what pitfalls came up that you want to avoid?  

Has your son/daughter been diagnosed (previous to the ED) with any other disorders like bipolar disorder, obsessive-compulsive disorder, anxiety disorder, borderline personality disorder or depression? Did a psychiatrist do a complete evaluation? If something still does not seem "right" in your loved one's behaviors, do not hesitate to get a second psychiatrist opinion. 


Does s/he take medications?  Is a psychiatrist consulted on a regular basis to make certain that these are still effective? Has s/he recently (if s/he is still in her 20's) begun to struggle with the same issues currently being treated or with other issues that seem to be insurmountable, for example anxiety? It might be time to make another visit to the psychiatrist.  Did your loved one struggle with anxiety or depression when younger?

I need to emphasize this point again:   Is a psychiatrist consulted on a regular basis to make certain that these are still effective? Has s/he recently begun to struggle with the same or  other issues that seem to be insurmountable, for example anxiety? It might be time to make another visit to the psychiatrist especially if the current one doesn't appear to be addressing the situation.

If your son or daughter has one or more co-occurring brain disorders, often referred to as a co-morbidity, the path is more difficult for sure.  In addition, other treatment methods may need to be used.  This document may prove to be of some use.  

Is their weight fairly stable or in addition to binging/purging (B/P) is s/he also restricting food intake and losing weight? 

Is s/he dual diagnosis? By that I mean, in addition to the eating disorder does s/he use alcohol and drugs to your knowledge? Those in the profession use this term -- dual diagnosis --  assuming you know what this means.

Does s/he actively work with a therapist/nutritionist? Does s/he have health insurance? Will s/he have a doctor in your location who can periodically do lab work to check on electrolyte levels? It'll be important that these folks work with your adult daughter or son and that they and s/he take the lead for her to get well.

If you can persuade your loved one to sign a release so you know what's going on, that's great. For those who aren't aware, once your loved one is an adult you have no right to access to his/her medical records unless s/he signs a document permitting access. For more about this see my post about HIPAA.

I recently became a legal Guardian for my adult family member.  I also was granted "Mental Health Authority" by the Court.  This can be an expensive process if your loved one is an adult but the status has now provided me with a means to keep up on her treatment, to effect treatment for her, and to obtain her medical records.  I understand that the process is simpler if your loved one is not yet 18.  The laws in each state are different.  We are in Arizona.


The work, though, belongs to your loved one and the team.  Here is a link to the composition of a team and their roles.

May I suggest some strategies:
1 - If s/he has medical insurance, great! If s/he cannot continue to access health insurance (through COBRA or through your policy), find out if your state offers health insurance for low-income/no income folks - Medicaid, for example - and strongly encourage your loved one to sign up.  The new health care legislation contains the ruling that pre-existing conditions are not to be barriers to coverage.  S/he can obtain health insurance and at the minimum s/he will be able to take care of lots of medical issues that may arise as a result of the eating disorder (ED). Some  offer limited mental health coverage (and this is changing, too because of the Mental Health Parity Law, unless the group coverage contains few employees - something that must be addressed) and can be a resource for your loved one for medications and lab work, for example. 


 There is quite a lot of good information about insurance at the NEDA site and in the NEDA parent's manual/toolkit.

2 - if s/he does use drugs or alcohol, please consider finding an Al-Anon group for yourself so that the members can offer you support and understanding, an ear and a shoulder, and a place for you to learn how to focus on yourself rather than get all caught up in the churn of the disease. If s/he is willing to attend AA meetings, provide him or her with information about meeting schedules in your area and encourage attendance. By that I don't mean tell her or him to attend. Rather, encourage your loved one so s/he can find some support and to stay clean. If s/he has identified other support groups through the local mental health community, that's great too.

3 - Check to see if there's a local branch of NAMI (the National Alliance on Mental Illness). They may be able to offer you connections/resources.  The National NAMI now provides information about eating disorders.  Knowledge about eating disorders being biologically based brain disorders has been slowly filtering down to local branches, but not quickly enough (IMHO).


4 - if  you can still control the purse strings and it's your home, you do have leverage. Your young adult needs to follow any rules you might/will want to set up so you don't suddenly find yourself retreating into your bedroom while the rest of the house is slowly taken over by their behavior and their stuff. Early on, we worked with our loved one and therapist to reach agreement on the house rules. A discussion made it quite clear that these were our idiosyncracies and since it was our house, it was important for us to feel safe and comfortable in it. The discussion helped our loved one understand and we were very willing to bend on some of the issues, too.


5 - is there a residential facility near you where s/he could live rather than at your home if living in your home is out of the question? If s/he has continuing health insurance, would the insurance cover that? Some of these facilities offer halfway situations that provide training in everyday activities including shopping for groceries, setting up a budget, etc. This might help prevent the desire to "hide" and not continue to deal with the real world.


6 - is there adult foster care available through an agency?  Establishing a solid relationship with another adult in their home where one or two others live as well may offer a form of independence as well as the social support needed.

  7- is your home in or near a major city or metropolitan area that offers shelters for people? If your offspring cannot abide by your rules and the situation in your home is becoming chaotic or even dangerous, s/he is going to need a place to stay and it will be important for you to insist that s/he move out.  I realize this is a scary thing to do. Many times your loved one will be shocked enough by your determination that they must move out that they will stick with your rules. S/he is now an adult. S/he needs to take responsibility for his/her actions and to understand there will be consequences if s/he does not follow rules. His/Her job is to get well. You cannot make the adult person decide to get well;  you and the treatment team can work with her/him but s/he will need to decide to do that.  Often, because of his/her disease, getting the wherewithall to do that can be very difficult.  They need you or someone as their ally.  However, see point 10 (below) if the person has become incapacitated by her/his disease or seems to be unable to make clear decisions about care.  Check out my post about a "recovery coach."



Please remember that you did not cause it, you cannot control the eating disorder, and you cannot cure it. You can provide your adult child love and support but that doesn't include exhausting yourself in the process. 

  8- has your son or daughter thought about why s/he wants to move home as well as for how long and shared those thoughts with you? Having a goal may assist him or her and you in limiting the amount of time s/he needs to get her feet back on the ground. This will help you make it clear that this is a short-term deal and not a long-term solution.   However, recognize that recovery for adults can take a long time.


  9- is there a therapist in your area with whom s/he can work? If not, FEAST, NEDA, and  NAMI can help find those who offer sliding scale rates. If you live near a university with a medical school, they may be able to offer a list of local doctors, nutritionists, therapists, a support group, etc. or even host a program that /she can participate in.


  10- if your son or daughter is seriously ill and is endangering his/her life, investigate what options are available to you legally to assume legal responsibility for him or her or to intervene so that s/he is placed in a facility for care that s/he does not understand is necessary to save his/her life. If you do not have an attorney, call your legal aid office. If the situation is a medical emergency, call 911 and get your family member to the ER of a hospital where they cannot be turned away, at least for the initial stabilization. Speak to a social worker about possibilities beyond that. 


11 - Some have been fighting their eating disorders for a very long time.  A relatively new approach was forwarded by two researchers in their 2015 paper Severe and enduring anorexia nervosa (SE-AN) - in search of a new paradigm by Stephen Touyz and Phillipa Hay (check out the link in the "Of Note" right hand column.  My family member falls in this category.  Dr. Gaudiani's book also addressed this in a chapter of her book, Sick Enough.  More resources are being developed as studies continue to help people severely entrenched in their disesase and its brain patterns.  I will address this in a future post.

Re legal issues - If you live in California or even if you don't, give the following law firm a call.    This firm specializes in helping family members and/or adults with a diagnosis of an eating disorder retrieve expenses or get insurance companies to pay for treatment for their loved ones.

Here's more information:
Kantor and Kantor, LLP
19839 Nordhoff Street
Northridge, CA 91324
(818) 886-2525
www.kantorlaw.net

Remember that with the passage of the recent health insurance legislation, your son or daughter can remain on your policy until they are 26.  If you need to have them rejoin, they can  and they cannot be turned down.  In addition, your son or daughter does not need to live in your home to receive this benefit.


A recent legal decision titled Wit v UnitedHealthcare Insurance company may, many of us hope, change how the insurance companies and therefore treatment centers serve our family members.  Check out this blog written by Steven Dunn - https://.adadsjourneywitheatingdisorders.home.blog and the post "Treatment Providers .... The Rules have Changed."

I do hope these thoughts are helpful. I know the list is long. It pretty much distills a lot of what I've learned over the several years. It does not address Social Security Disability and SSI that are more relevant for those who are living independently.  These are potential opportunities, especially if your family simply cannot afford to continue to provide treatment and/or (a related issue) if you are retired and living on a fixed income.  See the link in the "of note" section When the Financial Well Runs Dry.

If you are wealthy or not and may have resources to leave in a will and if your daughter or son will probably or may be disabled by their illness for the rest of their life, you may want to consult an attorney and investigate setting up what's called a Special Needs Trust from which they can obtain funds (distributions) to supplement the funds they are getting from the government. This is legal and advisable because any funds one leaves to your son or daughter can rapidly evaporate in treatment. 


Here are some links to information about Special Needs Trusts provided to a NAMI Family to Family group:

For additional info about special needs trusts, see these links


Finally, many with adult children fighting an eating disorder wish there were more information available about how to work with an unwilling adult using the Family Based Treatment.  A program has been established at UCSD and at the Center for Balanced Living (Ohio) to help you work with your loved one.  Here's the link.  As well, the program produces a newsletter, holds seminars, and once a year has provided an annual conference (in 2016 the dates were February 25-27 and I attended and learned an amazing amount).   I know of one family whose adult has returned to their household and they are managing somewhat; however the adult has decided to recover.  Certainly, using LEAP and working with a family therapist knowledgeable in eating disorders and current on research in the area, might work too.

Men and Boys Get Eating Disorders, Too

This past summer I went to see “Eat, Pray Love.”  I’d read the book, enjoyed it and identified with many of the things Elizabeth Gilbert wrote about and decided to see how well the book translated into a movie.  Javier Bardem was fabulous; in fact all the men were.  A recent article divulged that Julia Roberts worked intimately with the casting folks to get just the right man for each role – terrific casting.  Julia Roberts played her role with her usual verve and style.  It wasn’t the greatest movie but it was entertaining and the cinematography was gorgeous.

The soundtrack is quite good and includes several of my favorites, especially “Harvest Moon.”  But the lyrics of the piece that I’d enjoyed listening to for the music, "Flight Attendant" by Josh Rouse, made me pause. 

I’d never really listened to the lyrics before and was taken by surprise at the content that fits right now for the discussions going on about bullying as well as about our sons, too.

When the media or most of us think about eating disorders, the image that comes to mind is that of a female. Rarely do we think of boys and men.  Yet, according to statistics including those available on the National Eating Disorder Association's website  “....more than a million men and boys battle the illness every day."

So what resources are available?  On April 17, 2007, The Wall Street Journal, a daily periodical that has continued to publish articles about eating and other brain disorders, ran an article titled “Men and Boys Lack Options to Treat Eating Disorders.” (p. D1).  The statistics in this article included that as many as 300,000 young men in the United States are diagnosed with anorexia and more than two million are caught up in binge eating.  There was no mention of bulimia but it would be hard to believe that this is not prevalent, as well.   

Included in the article was a paltry list of three facilities in this country that offer treatment to men and boys:  River Oaks Hospital in New Orleans, Rogers Memorial Hospital in Oconomowoc, Wisconsin, and University of Iowa Eating Disorder Program.  I believe Remuda Ranch may now offer treatment for young boys.  The Cleveland Center for Eating Disorders and the Center for Eating Disorders at Sheppard Pratt in Baltimore are two others.  There may be additional places, as well.  I’ll add them if I hear of them.  I’ve heard the most about Rogers Memorial and its dedication to men and boys.   Cynthia Bulik, Ph.D., of the University of North Carolina at Chapel Hill and author of the book Crave noted that “We have abandoned men.”  Very few trials include men; very few studies include men.  This must change.

So, in the meantime, what resources are available to parents of young men and boys?  To older men?

One is http://www.mengetedstoo.com developed in the U.K.

Another is the book and associated website Boys Get Anorexia Too.  http://www.boyanorexia.com

There’s the National Association for Men with Eating Disorders http://namedinc.org as well as a site created by Patrick Bergstrom:  http://www.ichosetolive.com

Here’s a link to an interview on eating disorders in adolescent boys with Mark Warren, M.D. of the Cleveland Center for Eating Disorders.  http://www.maudsleyparents.org/boys.html as well as a link to a guest post on the blog,  A Voice In Recovery.  http://voiceinrecovery.wordpress.com/2010/09/30/men-get-eating-disorders-too/

I know of husbands, sons, and grandsons (depending on my acquaintance) who are fighting eating disorders and who must withstand the additional stigma of being male yet presenting all the signs and symptoms.  Here is a wonderful article written by a young man about his battle with anorexia.

These diseases kill or disable millions of our best and brightest, male and female.  This needs to change.

Thursday, October 28, 2010

Borderline Personality Disorder and Eating Disorders

I continue to mention Borderline Personality Disorder (BPD).  My book list contains a few items about BPD.  And, as I noted in my previous post, I prefer to call BPD Emotional Disregulation Disorder.  This characterization is not entirely accurate since BPD is said to have three dimensions having to do with cognition, feeling, and acting.  Those diagnosed with BPD exhibit faulty thinking, emotional disregulation, and impulsivity.  And, there are genetic underpinnings with the inheritance of traits.

When I started researching this topic, one of the first things I learned was the anecdotal response, namely that those diagnosed with it are difficult to treat and most therapists (this was three or four years ago) are not willing to work with people who’ve finally been diagnosed with it.

I say finally because in many cases the behaviors and reactions of one with BPD mimic other disorders so the diagnosis is not made for years (similar to the variations of bipolar disorder for some folks, which by the way, is termed a brain disorder).  Marya Hornbacher, author of the pivotal memoir Wasted, notes in Madness, A Bipolar Life, that the average age of onset of bipolar disorder is 23 yet the average age of correct diagnosis is 40 (p. 282) 

In the past couple of years, a broad group of psychiatrists, researchers, parents and friends have worked hard to increase the knowledge about BPD including the fact that it is treatable.  They have formed organizations such as the National Education Alliance for Borderline Personality Disorder  that has a website:  http://www.borderlinepersonalitydisorder.com/  

 In addition, several books have been published, one of the most helpful for parents being The Essential Family Guide to Borderline Personality Disorder written by Randi Kreger.   

This group worked long hours with the National Alliance on Mental Illness with the result that this disorder is now recognized on the NAMI website (as are eating disorders).  The NAMI and the NEA websites are outstanding.  The NAMI website includes a link to medications 
as well.  I've often referred parents of those with eating disorders to the medications link because many of the descriptions are up-to-date and several of the medications are prescribed.

One of the reasons I am raising this issue is a variety of studies show that at least 25% of people with an eating disorder also meet diagnostic criteria for BPD.  Other studies indicate a lower or broader percentage range. Whatever the case, this gets back to my recommendation to parents that if, when re-nourished, a person’s maladaptive behaviors continue in spite of the use of the tools gained during treatment, then it’s time to have another psychiatric evaluation.  Since something on the order of 65% of people with eating disorders earlier exhibited an anxiety trait, a psychiatric evaluation is useful in any case to make certain the person receives treatment to learn how to deal with it.

If the diagnosis of BPD is made, remain steadfastly supportive of yet detached with love from your loved one because it’s a lonely place to be.  These  Guidelines have been identified as useful for families.   Treatment protocols are broadening as understanding of how to work with people with this diagnosis increases.
Dr. Amy Baker Dennis provided an excellent presentation on the treatment of those with BPD at the NEDA conference, unfortunately scheduled the very last day at the very last session before the closing general session.  Often those with BPD turn to other substances to self-medicate.   Using treatments like motivational interviewing and dialectical behavioral therapy, progress can be made.  Others would benefit from hearing her talk.  I hope it was recorded.  

PS - I just stumbled upon (9-2011) Dr. Thomas Insel's thoughts about Borderline Personality Disorder and am pleased to add his remarks to this conversation.  How refreshing to see that he, too, feels that the diagnosis terminology is misguided.

Is the term "Eating Disorder" a misnomer?

This subject has been bugging me for a very long time.  I feel the same way about the term Personality Disorder and more specifically Borderline Personality Disorder (BPD) because I believe that BPD like ED originates somehow in the brain.  Something isn't working "right."  For example, I believe that BPD really should be called Emotional Disregulation Disorder until a real, working name can be ascribed to the disorder. 

For the same reason, I think there needs to be another term for what we now call Eating Disorders.  I also think that Dr. Walter Kaye's research may just provide an answer for my dilemma.

About three weeks ago I ordered and received The Oxford Handbook of Eating Disorders edited by W. Stewart Agras.  This impressive volume contains an article by Walter H. Kaye and Tyson Oberndorfer titled "Appetitive Regulation in Anorexia and Bulimia Nervosa" that one, at least for the time being, can access by going to this link and scrolling down through the contents.  

One can access a related article here published in Neuroscience, Vol. 10, August 2009, p. 537-


I'm still pondering everything that I've been reading this morning but one thing does hit home and that is this quote on page 84: 

"Taken together, these PET-radioligand studies confirm that altered 5-HT neuronal pathway activity persists after recovery from AN and BN and support the possibility that these psychobiological alterations might contribute to traits such as increased anxiety, which may contribute to a vulnerability to develop an ED."

Imagine if one could instead call these disorders 5-HT disorders.  Not as sexy, sure.  But if these are indeed brain disorder/dysfunctions as I at a gut level (sorry) believe them to be, then what a change there might be in the community as a whole to the call for treatment -- complete treatment -- of these disorders as psychobiological illnesses therefore eligible to be covered by health insurance to the fullest extent until a person is recovered and has learned tools to harness their personality traits.

As one who has recovered from a 5-HT disorder (there, I said it), I think there are a lot of links that our bodies will reveal.  For example, if my running was indeed a stress reliever (and I believe it was), then what of my own tendency to absorb liquid rather than perspire it out while I run?  In my case, my hormone vasopressin  has consistently been secreted at a higher than normal rate when I run long distances or hike long distances.  My body perceives stress and responds by secreting more of this which leads to water retention.  I actually gain weight when I run long distances and drink to replace fluid lost in perspiration.   Is this related in some way?  Maybe further research will uncover the truth.

In the meantime, I think I'll start calling an ED a 5-HT disorder.

Wednesday, October 27, 2010

Water, purging, and a serious warning based on real life experience

3/24/2019 update

I keep thinking of things that I believe others should know.  After just writing about aspartame and then water, in moderation, I remembered this.

Water is life.  Our bodies are anywhere between 55% and 78% water.  Our brains are about 85% water.  Even our bones have water.  Our blood is composed of water.  Our brains and spinal cord are bathed in a fluid based on water.  I could go on and on.

Our bodies are also complex organisms requiring just the right balance of electrolytes like calcium, sodium, magnesium and potassium, for example.  When one gets dehydrated or binges and purges or drinks too much water, this electrolyte balance goes out of whack and our bodies become susceptible to things like seizures, heart attacks, coma and kidney failure to name a few things.

Long distance runners (which I was for many years so have kept up on this) and others exercising for a long time have experienced this when they suddenly feel faint or dizzy or nauseous, pass out, quit urinating, get muscle cramps, have heart attacks, or worse, die.  Runners and those who exercise in other ways can also experience the opposite when they ingest too much plain water without enough electrolytes and glucose in the solution.  Some of the symptoms are similar, actually, and can be confusing to doctors.  This is important to those of you whose children participate in track and field, football, soccer and other sports.

For those with children with bulimia and anorexia, monitoring them becomes critical and forbidding them to exercise heavily until they reach a more stable state becomes very important.

Those with bulimia or who take laxatives purge away this electrolyte balance.  Vomiting reduces the amount of electrolytes in one part of the body so the body turns to its stores in other areas to try to regulate back to normal.  In the process, the amount of sodium, for example, in the blood stream is reduced.  When this happens, organs like the heart aren’t bathed in the appropriate balance and physiologically, the heart starts to react negatively, beating irregularly, for example.

Others water load to gain weight or to trick their bodies into believing that they are full and don’t need food.  Water loading is dangerous, too. 

Often, as many of us parents have discovered, the person with bulimia must be rushed to the hospital and given IV fluids to re-balance their electrolytes and restore their fluid levels to normal so their kidneys and other organs including their brains can function.

A danger our family discovered is something called central pontine myelinosis.
I’ve linked this so the reader can learn more details.  Basically, if the sodium levels are corrected too quickly during intravenous rehydration with an increased level of sodium in the bloodstream, the person is in danger of serious nerve/brain damage.  By some miracle, this did not happen to our family member possibly because her body had become accustomed to the fluctuations that had been occurring for years.  There is now some question about long-term effects appearing later.   The person needs to be monitored.  Note that if an individual is suffering malnutrition, like many people with eating disorders are, the body is more susceptible to this.

Make certain that the ER doctors monitor your loved one constantly and administer the IV fluid for a limited amount of time.  Don't hesitate to ask questions. 

Speaking about chemistry, what about Aspartame?

Everywhere I go, whether it’s out to eat, to the grocery store, or to a corner gas station with the ubiquitous coffee pot, I see packets of sweeteners.  A key ingredient of some is aspartame.  When I visit MSNBC to catch up on the news, I invariably see advertisements for the latest way to reduce tummy fat or lose those extra pounds.  At the grocery store the check-out aisle is lined with magazines purporting to give the reader the secret to a flatter tummy, thinner legs, whatever.  Our country is in the midst of an anti-obesity campaign that is well-intentioned but at what risk to those with eating disorders?   

My mother’s elegant china set given to her in the 1940’s sits in my cabinet with dinner plates almost a third smaller than the set I bought 18 years ago.  Portions at restaurants are always big enough so either my husband and I can share a dish or we inevitably can each take home half of what we were able to eat to enjoy the rest again the next night.  We join friends for meals and watch them order diet sodas along with fries and a sanchwich or coffee with artificial sweetener and a sweet roll.

But the kicker for me is watching someone I love drink 40 ounce diet drinks at least two to three times a day and add packets of aspartame to the soda!!!  Or put several packets in a cup of coffee.  I know that other parents watch their children with eating disorders guzzle diet soda.  Jenni Schaefer talked about her diet soda habit in one of her books. 

What we parents do get is that they are using the fluids of these kinds of drinks to ward off hunger.  This happens several times a day which means that the intake of the artificial sweetener far exceeds whatever the industry presumed when they tested these products for safety.  And, I think more is going on and I am very alarmed about it.

We all have a “reward center”, to put it in the vernacular, in the brain.  Many of us have heard of dopamine or endorphins, chemicals that make us “feel good.”  These chemicals are released for a variety of reasons and affect other levels of other chemicals in the brain, too.  More research is illustrating that the sense of sense of sweetness is rewarding.  In fact, our bodies need sugars in order to function.  The brain consumes about 500 calories a day, most of it in the form of glucose, a sugar.  (Even the Resources for Science Learning article is linked to diet information!)

But what happens when one consumes aspartame?  Does it activate the reward systems?  Does the body know the difference?  Research varies as the links illustrate.

One key question for me is, is this stuff addictive?  I think so.  I do not know if it’s addictive because of its basic chemistry or because the person who gets hooked on it keeps craving more to satisfy the sweet sensation the brain reports while the brain also recognizes that it’s not getting calories.

Other questions include, does aspartame and its by-products harm the brain (other than the fact that a person avoiding sugar along with calories starves the brain)?   Is one more susceptible to addiction to aspartame, the more one starves?


These questions need to be answered.  The average person does not need diet soda.   I’m not sure anyone does, actually.   The industry believes we do and uses billions of dollars in advertising to persuade us to believe we do.  But, we don’t.  Water is life.  Drink that instead.  In moderation.  Moderation….. more on that next time.

Tuesday, October 26, 2010

Reflections on my recovery - better living through chemistry

[Updates provided]
So, picture this (pun intended).  I'm taking an art appreciation class at The University of Arizona offered by the Humanities Program and  taught by an outstanding professor, Sarah Moore.  The title of the class is "My God; I’d rather go to Paris than to Heaven: French Art 1780-1886 and we have the benefit of her vast encyclopedic knowledge about the life and times of the artists as well as their technique.  We've learned to distinguish between neoclassicism, rococo, romanticism and realism plus things in between.  It's my first art appreciation class!

Today we looked at Gericault's work.  A benefit of this class is the knowledge of the folks who are attending; the average age is probably approaching 60 and many have traveled extensively and are art patrons.  I truly am in heaven.  One of my classmates actually studied the uniforms of the French royal guard, etc. during the 1800's and was able to tell us more about who was represented in Gericault's "Charging Cavalryman" (won a gold medal) and "Wounded Cavalryman".  Amazing.

Anyway, Professor Moore then put the 1819 painting "Raft of the Medusa" up on the screen and I could not help but feel that the painting depicted how I felt last Spring when I again thought my family member was going to die and there was absolutely nothing more that I could do.



I truly felt that way.  I'm writing about this because last Spring was a turning point for me.    Today's art class gave me the image to depict my state of mind, which was despair.  I and the team and the facility(ies) had done everything we all could think of to give my beloved a chance.  Like the people on the raft, I felt like the rescue ship was drifting away.  I know this sounds dramatic but after years and years and years of trying to figure out how to help, I thought I couldn't face another round.  A year ago was just too terrible to live through again yet I knew I would, if I needed to.  And, I felt I no longer had the wherewithal to manage that.

Years before a doctor had suggested to me that I had dysthymia and recommended that I take something for it.  And, for years, I denied this.  Someone else, sure.  Not me.  I could soldier on, as my parents had approached life and its vicissitudes.  In fact, I can remember when I first felt this way - eighth grade - when I would suddenly feel chilled to my soul, retreat to my bed and pull the covers over my head.   I didn't feel depressed the way William Styron described his bout in his book Darkness Visible; more like I found it difficult to be cheerful for most of the time.  Being cheerful would be work at those times.  

I also was terrified of taking a pill that would affect my brain.  I was scared that if I did take a medication, something would go awry and my eating disorder would take over again against my will.  I really did think that.  I felt that I had worked so very hard to get to where I was that it was simpler to deal with my low level of the blahs.  But last May I knew that I had to do something.

My therapist had given me the name of a psychiatrist here.  One afternoon, as I was reading Crave in order to write a book review, I came upon the definition and a description of dysthymia.  This was my turning point.  That was my state of mind.  In print.   I got up, opened my purse, got out the card, and called the office and obtained an appointment --   much to my astonishment because here appointments with psychiatrists are often scheduled, I've been told, one to two months out.  Well, the universe was in synch because there was an opening eight days later.  I took it.  I went in, spent an hour with him going over everything. His remark was that my family was "loaded" and he firmly recommended that I begin a medication.

Wow.  Loads of thoughts went through my mind like, "I"m a wimp."  "Pull yourself together."   But another thought came along, too, and that was "do I want to go on living this way?" and the answer was "it was time for a change."

So, I took a leap of faith.

And, although I no longer experience the Russian soul my grandmother called me (given my ancestry), I am not apathetic, either.  In fact, during an event I attended this evening, I read a quote by Eleanor Roosevelt that friends of mine at the table decided was still (based on the attitude they knew me by) quite appropos for me - "I could not at any age be content to take my place in the corner by the fireside and simply look on."


Time for a P.S. here in February 2011.    To review, I was prescribed a common starter med and worked my way up to the full dose of 40 mg/day.  After several months on this med, I realized I really didn't like how I felt nor how I was responding to life.  I felt lackadasical, without real motivation, and to the point of not caring about some things.  This wasn't me.  I did feel less depressed, however, - if less depressed was supposed to feel like not caring as much.  So (and this is why continuing to see a psychiatrist who prescribes meds and who is familiar with me is very important) I returned on my regular appointment (every three months) and commented that I wanted to either reduce or get off this med and find another that worked better for me.  [I am wondering if for some with anorexia, this is entirely the wrong med because it may interfere with the motivation to get well as it did with my motivation to seemingly do anything!!]


About two years before all of this, I had explored the possibility of another med but had backed off when I noticed that it was contraindicated for those especially with bulimia.  Since I have been in recovery of more than 35 years, I discussed all of this with my psychiatrist at length and did quite a bit of research myself.  The upshot was that I tapered the one med to 20 mg and starting taking the new one, but at half the regular dose and only in the morning (150 mg SR).


At first, I didn't notice a difference from the new med (which is quite common) although I did notice that I was more engaged with the world having tapered the other.  About four weeks into the new regimen, I started to notice a difference in my energy level, my attitude, my ability to sleep at night, and especially my mood.  Last night my husband observed that I was humming a song; something that I hadn't done for a long time.  A couple of weeks ago he remarked that he really enjoyed hearing me laugh again.


I'll check in again on this progress.  I'm not one to take meds and usually prefer less than required.  This experience also seems to be similar to my response to other meds, i.e. I don't need as much as the drug company(ies) indicate but perhaps that's because I do nourish myself well in all respects (?).  That I'm in my sixties with a slower metabolism probably has something to do with this, too.  [Having participated in 2013 in 23 and Me, I've learned that my chemistry is not responsive to certain of the antidepressants.]

P.S.   End of July 2011.  It's quite clear to me that the first antidepressant was not working the way I had hoped it would.  Yes, it did relieve my anxiety; in fact, I quit caring about things at the 40 mg dose.  After several months, my doctor reduced the dose to 20 mg and recommended that I begin using the second (a different class) at half the dose.  As I reported above, it seemed that this combination worked.  I did have more energy and certainly a more positive outlook.  

But I still felt disconnected from many things.  "Not caring" isn't quite the term I would use.  Living in Stepford (as in the movie Stepford Wives) is more like it.   At any rate, I didn't like this aspect of who I had become.  I also was very annoyed by yawning spells, something I learned was common with the first.  I'd developed a cough about two months after I started it, too.  That, with the decreased dose, was diminishing but still there.  It was diagnosed as a post-nasal drip but I was tired of taking a claritin so frequently.  This symptom is known, too.   And, finally, my cardiologist informed me last week that I'd put on weight that he wasn't happy about.  He gave me a brief organic chemistry overview of another antidepressant and said he'd learned that the weight gain side effect wasn't as pronounced.


So, I still wanted off the first antidepressant.  So, about two weeks ago I decided to taper again.  I have had maybe one what is called a brain shock which is a really weird experience but otherwise the tapering has been uneventful.  I'm not keen on increasing the  dosage of the new med and so far my mood has held steady.  This may be because I'm spending more time outside in the sunshine and deliberately not using sun glasses for several minutes to get a full dose of the sun's light into my brain.  The current dosage appears to be working and my mood has been fairly consistent.  At least I don't feel depression simmering below the surface like I once did.  I've engaged in a lot of talk therapy for the past two years and my therapist just gave me "clearance" to take a break for awhile given my progress.  Having my program and the literature has helped tremendously, too, as has practicing being aware of how I am feeling and exploring what I can do to keep myself on a somewhat even keel while continuing to be my family member's advocate.

PS - Early 2012.  I completely stopped the first one a week ago.  Even with a 10 mg dose, I felt disoriented and foggy for about three days after stopping but now have moved on without further withdrawal symptoms.  What I am noticing is that I can cry again. I have cried before this but it hasn't been the same.  My sympathy channels seem to be opened up again.

PS -June of 2012.  I briefly tried an increase in the dosage of my new med to the standard 300 mg/day in an extended release form.  Briefly because by day 4 on this I felt jittery, snappish, and my pulse had increased 15 points above where it had been.  I chose to return to the 150 mg dose.  It think my decision to try was based on a situational depression of again feeling despairing about my family member's recent behaviors.  On the other hand, she's also taking on other things that may lead to a change of those behaviors.  Meanwhile I'm still attending meetings and paying more attention to using the tools I've gained in therapy to move on.

PS - August 2014.  I'm continuing to take the half dose of buproprion but only in the morning.  I'm pleased to report that although I certainly can feel sadness, I no longer captured by despair.  I also know if I feel it creeping up on me (which it has from time to time), I have the tools to keep it at bay.   Good nutrition, sleep, exercise and sunshine are definitely among those tools!! 

Monday, October 25, 2010

Books I pull from my shelf when thinking about adult ED

In an earlier post I mentioned two books that reflect my journey to recovery from anorexia/bulimia.  There are others that incorporates this story, as well.  I think these five books would be useful reading for an adult beginning their recovery from an eating disorder.  The four books are: Crave by Cynthia M. Bulik, Ph.D.; Sensing the Self by Sheila M. Reindl;    <Gaining>  by Aimee Liu, Restoring Our Bodies, Reclaiming Our Lives edited by Aimee Liu, and most recently Brain Over Binge by Kathryn Hansen.   It was while I was reading Aimee Liu’s book a couple of years ago that I began to put it all together.  Having now read her second book, I feel strongly it should be added to this list.

Crave is a thorough, heavily researched, and written for the layperson toolbook that provides readers (whether fighting binge eating disorder or knowing someone who is) with relevant information including real-life accounts; up-to-date science on genetics, personality and behavior; and techniques based on the psychology of personality and behavior to get people on the road to recovery from Binge Eating Disorder (BED).   Binge Eating Disorder (BED), a disorder involving excessive or compulsive consumption, is characterized, according to Bulik, by two points:  “…other people would view it [the amount eaten] as an unusually large amount of food and ….[the person] is totally out of control while eating it.”  Since bulimia is characterized by binging and then purging, I ordered the book.

Moving from this point while providing information on all eating disorders including a fascinating chapter titled “Be Comfortable in your Own Genes” in which she includes family and twin studies as well as current genetic information, Dr. Bulik draws on studies and case histories to substantiate the notion that behavior is a combination of genetics, personality and environment.  More importantly, she illustrates the importance of these factors in the development of binge eating disorder by discussing each one.  Much of what she presents, including nutrition, the dynamics of families (a touchy subject that she handles very well), and the personality as well as mental state of the individual can be found in other current comprehensive writings about eating disorders.

However, what I found to be most helpful and fresh was her intense focus on the concept of “know yourself.”  I think this focus has been lacking in other similar books and I would recommend this book specifically for anyone with any kind of an eating disorder for this reason.

A substantial and easy to understand part of this book is devoted to providing models – “profiles” --  to help the reader identify his or her behavior patterns and personality characteristics to effect what Bulik calls a ”….permanent solution…, [meaning]  real long-term behavior changes that you embrace and that become your toolbox for success for the rest of your life.”  Bulik provides details to describe ten types including, for example, the Moody Blues Binger, the Angry Binger, and the Low Self-Esteem Binger.  She spends considerable time on the concept of triggers, which she defines as … any cue, either in the environment or inside your head or your body, that leads you to unhealthy behavior…” in relation to these profiles.  She highlights the concept of “emotional velcro” in her discussion of what might make one person more susceptible to an eating disorder than another. She then provides strategies to effect what she calls a “protective response” by again emphasizing that the reader needs to look carefully and long (journaling or charting is suggested as a tool) at his/her own behavior, triggers, and red flag feelings.  Bulik’s goal, using a lot of nutritional information also provided in the book, is to help the reader understand oneself, break her/his pattern of behavior, develop healthy eating habits and forge a new path.

Sheila M. Reindl’s book, Sensing the Self, is written specifically for women in recovery from bulimia and is based on research as well as interviews with thirteen women, not a big data set admittedly.  However by drawing on many, many studies and by speaking with these women at length, Reindl was able to ferret out similarities that rang true for me and which I think would be useful for others to think about. 

As a caveat, I did not fully support all her interpretations of family interactions and felt there was a great deal of blaming towards family members.  I do know that some families really do have dynamics that are harmful for the healthy growth of a child.  Reindl referred to such behavior as emotional neglect and abuse, terms that are relevant in some cases, but certainly not in all.  One cannot know until one is in the thick of it or sometimes until years later.  I did appreciate one important sentence,  “ .... Invalidation of one person by another can occur without either party being aware of it at the time.” 

What is important, I think, is learning how to communicate effectively using active listening so that a child/young adult’s needs, fears, interests and yearnings are acknowledged and valued.

Some parents, through modeling by their own parents, never learn how to parent or even listen effectively.  Being present, attending activities, taking meals together, etc. may lead them to believe that they are doing the right thing.  It’s the how rather than the what that makes the difference.  I have learned to accept that unless someone is truly malevolent or seriously ill, one tries the best they can to do the right thing.

The words in the book’s title – Sensing and Self – are basic to her belief that one must be totally in touch with all one’s senses in order to recover.  One must be able to learn or relearn to experience and interpret life in a productive way.  Since so many with eating disorders flee from their own emotions and sense of experience – shut down, working on how to recover can be very hard and take a long time.  Reindl cites Marsha Linehan’s important body of work including Dialectical Behavioral Therapy, often referred to as DBT,  a method that “….integrates aspects of cognitive-behavioral therapy, dialectical thinking, and Zen mindfulness practice, comprises many of the ingredients that the women [in Reindl’s book] found helpful as they learned to sense and tolerate self-experience.” (p. 13)  Reconnecting can be painful.

Ultimately, Reindl proceeds to study the importance of six essential elements to recovery, which are:

  • A felt sense of enough
  • A specific and intentional act directed toward getting help
  • Others' timely, attuned response to the act directed toward getting help
  • An abiding context conducive to sensing self-experience
  • A belief that one will recover
  • Investment in the process of recovering.
My recovery incorporated these elements and my progress relied on my investment in the process.  I need to re-emphasize here that I was seriously entrenched in my bulimia and I was in my early thirties when I had had enough.  My point is that through seriously hard work one can recover.

Amee Liu in <Gaining> brought my thirty-eight years of recovery into focus and outlined for me how I've “made it.”  I recognized so much!    In fact, the first section of her book is titled, “Know Thyself: Tempermental Truths.”  Liu writes in her note “….my psychological recovery took decades.” (p. ix).  As the book jacket indicates, “Through cutting-edge research and the stories of more than forty interview subjects, readers will discover that the tendency to develop anorexia or bulimia has little to do with culture, class, gender or weight.  Genetics, however, play a key role.  So does temperament.  So do anxiety, depression, and shame.  Clearly, curing eating disorders involves more than good nutrition.” 

I do believe culture has a part in this.  I say a resounding "Yes" to the rest.

Like Carrie Arnold and others, Aimee Liu incorporates extensive research on the work of research scientists, psychiatrists, psychologists and other therapists in her discussion of the life experiences of the people she interviewed.  Her Acknowledgments are as important as the content of the book itself, her Introduction as illuminating as the stories of others.   We are fortunate that these women contributed in writing to our knowledge of eating disorders and continue to travel and speak about the process of recovery, as well.

I've just edited this post to include Aimee Liu's second book - Restoring Our Bodies, Reclaiming Our Lives,  which I've written about in another post and include here.


Finally, and new to the scene, is Kathryn Hansen's Brain Over Binge.   Like the other writers mentioned, Kathryn Hansen also incorporates the findings of researchers as well as discusses her own journey.  She believes that therapy was not part of the equation that led to her recovery. Instead, she focuses on the concept of how a habit is formed.  I've written a thorough review of her book here.   In addition to the importance of nutrition, those with an eating disorder need to dismantle months if not years of habitual harmful behavior.  To do this, they must form healthy habits to replace the harmful ones.  Hansen discusses how she did this.

Again, I highly recommend these five books.

If you are what you eat, are you also what you think?



During the NEDA conference, one of the speakers put a cartoon up for all of us to see.  I wish I had a link to it here because as with most cartoons, the image with the caption is much funnier than using only words to tell the story.  The cartoon was of a squirrel on a psychiatrist's couch remarking that if one is what one eats, then s/he must be nuts.

So, instead, here's one that seems appropos given the topic!

I'm again mulling over the work of Dr. Tchanturia, specifically Cognitive Remediation Therapy.  I'm also thinking about a remark I made earlier today.    Our culture is not only very linear (which is why it's difficult for some people to understand that recovery is a process with set backs as well as advances), it also focuses on the idea that what we do is who we are

Taking away that "do" part without having the "are" part firmly in place (and it may be a lifelong development thing) can undermine even the healthiest of people.  For example,  it's a huge shock when one is laid off or one's profession -- take library science right now that is changing into a pick your book up from a locker rather than from a person --  changes, stripping a person of who they think they are.

Part of growing up is discovering all parts of oneself.  I think we need to help our children and grandchildren more in this way.  Growing up and finding oneself can be very scary, especially if one has a difficult time getting along in the world, anyway.  Helping our teens develop autonomy is an important part.  Genetics play a part, too.  (More coming up on this, too.)

My family's early focus when I was growing up was on my grades.  All A's meant I was "good" and any other grade meant that I wasn't doing well; at least, that's how I perceived it.  If I didn't "make the grade", I was restricted from other activities.  In addition, as I'm thinking back on this, this perspective also caused me to focus on memorizing material rather than thinking critically about it, the latter being a skill that's part of getting by in the world.  I imagine that much of this carried over unconsciously to my own child-rearing but I also know that I was determined to do things differently.  This is where I wrestle with the past yet realize that everything's done there and I have the present to work on and the future to look forward to.

A lot to think about.  I'm working on the next part of my recovery piece and may take a detour to look at more of Dr. Tchanturia's work here as well as other things related to the concept of "I think, therefore I am."

Saturday, October 23, 2010

States, Traits and Types

This Fall I joined a book group sponsored by WOSAC, an organization that supports and sponsors events for the Department of Gender and Women's Studies at the University of Arizona.  Each year, the continuing members discuss and select books for the upcoming semester and the group is facilitated by a professor.  This year the facilitator is Professor Adele Barker whose joint areas are Russian and Slavic Studies/Women’s Studies.  And, among the books chosen was Anna Karenina by Leo Tolstoy [the Pevear and Volokhonsky translation].  Little did I know, never having read the book, that I would find the discussion very important for me and my continuing education about the concepts of states, traits and indeed types, the first two terms mentioned often at the NEDA conference in October 2010.

In addition, I’d delighted in Helen Mirren’s portrayal of Tolstoy’s wife, Sophia, in the movie  “The Last Station” so I wanted to learn more about life in those times in Russia, especially since my grandfather was a Russian emigrant in the early 1900’s and because one of my grandmothers regularly told me from the time I can remember that I have a Russian soul (with good reason, I guess, given the ideas presented in theory about states, traits and types).  I found it illuminating to read this review of a biography of Sophia Tolstoy in the Huffington Post.

Our book group is quite eclectic, several of its members also writers, attorneys, psychologist/therapists, feminists (probably all), and other professionals, also all activists.  One of our members, the psychologist, mentioned that one of her family members is in another book group composed of mostly therapists who also read Anna Karenina  and determined that Kitty had situational depression (a state, defined in my Websters as “a set of circumstances or attributes characterizing a person or thing at a given time; a mental or emotional condition”) while Anna had a personality disorder, their diagnosis based on Anna’s traits.  In other words, for those of you who have not yet read the book – a frighteningly thick book but beautifully written -- Kitty responded to being dumped by her suitor by becoming temporarily depressed while Anna’s behavior and reactions throughout the book reflected traits that were ongoing.

I frequently read and hear that those with eating disorders specifically anorexia in the linked definition  tend to have traits such as perfectionism, anxiety, and obsessionality, and that these traits “….are often present in childhood before the eating disorder develops.”  More often than not those with eating disorders such as anorexia are very attractive, highly intelligent, sensitive, creative people.  I realize this sounds like a generalization yet it's amazing how many parents describe their children this way.

Then there are types.  If you were hired in the 1990’s or later (maybe earlier, I don’t know), you were probably asked to take the Myers-Briggs Type Indicator, a questionnaire that theoretically determines your personality type based on four categories symbolized by a letter.  So, for example, I vacillate between ISTJ and ISFJ and the descriptions of my “type” are actually pretty accurate.  (I’m also a “gold” for those of you familiar with the color typing.)

The MBTI has apparently gone out of favor in the psychology world depending upon who you talk to but is definitely still in use in the business world perhaps again illustrating the time lag between theory and practice.

So, what got me going with this?   

First, the terms “states” and “traits” were thrown around a lot at the NEDA conference. 

Second, I’ve learned through experience that just because one is “traited” (sorry) or “typed”, doesn’t mean that one is stuck, never to get out of a rabbit hole of an eating disorder or whatever.  To use an Al-Anon expression, some of these traits may be my character defects (a term I hate and why I think anyone with an eating disorder or who tends easily towards shame needs to have a sponsor who understand this fact and can guide a person carefully through their Fourth Step) or they may be my assets.  I’ve observed, as have others, that many with these same traits go on to flourish in what are known as the STEM fields of Science, Technology, Engineering and Mathematics, areas lacking women.
  
Third, many people believe that once re-nourished, those with eating disorders are healthy again.  I disagree.  I could access many resources on this point but feel it is not anecdotal to say that those who have struggled through an eating disorder have at the very least developed maladaptive (not good) behavior patterns in reaction to stress that need to be changed and, by the way, another trait is rigidity, and more seriously have suffered brain damage due to chemical fluctuations of binging and purging or starvation; never mind all the other harm that occurs.

Recently Carrie Arnold, whose book Next to Nothing I have and will probably mention several times, has recently written in her blog about the concept of a half-baked cake, noting that although the cake looks “done” on the outside, more often than not when tested with a toothpick or whatever, is still baking on the inside.  In the same manner, one who looks “done” on the outside because their weight has been restored, is likely to still need baking on the inside.
 
That baking will include things like therapy to learn new ways of behaving and thinking.  This is where I believe Dr. Tchanturia’s Cognitive Remedial Therapy (CRT) that I blogged about earlier is important and will be prescribed as an adjunct to Cognitive Behavioral Therapy (CBT) or Dialectical Behavioral Therapy (DBT), tools often offered to those in therapy with eating disorders.

We all need to learn how to live.  It’s not a magic process but one that is based on experience.  One of the skills, for example recovering from failure, is quite difficult for one who is a perfectionist but very important.
  
I like the Japanese proverb, “Fall down seven times, get up eight.”