Welcome

When I created this blog, I was "getting on" in my early sixties, hence the blog name. However, my adult daughter's eating disorder and co-occurring emotional dysregulation disorder and other co-morbidities - ongoing for about 33 years - became and was our focus as we attempted to help her get into recovery. By learning about, reflecting on, reading about, attending conferences and writing about eating and brain disorders, I created a place to blog what I've learned. I hope this blog will be of use to others, especially families of and adult sufferers themselves to help them get into recovery. I update posts from time and the update date will be present at the top of the post.

Sadly, my daughter passed away in early October 2021 mainly because her body became so malnourished that she was immunocompromised, contracted a severe infection that was not properly addressed during an earlier hospital stay the month before, and developed an overwhelming non-covid pneumonia following surgery to save her life. I believe she should have been able to receive palliative care but Arizona, our country, and even the professionals trained in the treatment of eating disorders, particularly anorexia, are not "there" yet. I address the issue of palliative care in a recent post below, initially written in November 2021. I am not a certified eating disorder specialist. I am an Expert by Experience and college-educated with a BA in Community Work with an additional certificate in a one-year program in Business Administration from the same institution.

I am passionate about all of this because, as Shakespeare wrote in The Taming of the Shrew, Act 4, Scene 3: "My tongue will tell the anger [and sadness] of my heart or else my heart, concealing it, will break. And, rather than it shall, I will be free even to the uttermost, as I please in words."[2016]

Travel Guide

If you're new to my blog, I recommend you begin on the right side and take a look at the "Of Note" offerings. Read Dr. Cynthia Bulik's recent published interview (5/4/22) "Rethinking Eating Disorders" if you want to print an easy-to-understand professional's expert opinion about anorexia for your family doctor or the therapist. [Early intervention is absolutely critical. For those whose eating disorder is categorized as entrenched or severe and enduring, read the editorial comment by Stephen Touyz and Philipa Hay for a new approach about treatment. It is possible for your loved one to recover! I have also attached a link here for additional papers on the subject of severe and entrenched eating disorders. If you are a family member or friend of an adult with an eating disorder and have been at this for awhile, I refer you to the posts within the title "Adult Eating Disorders and Recovery Tools" found in the Index on the right hand side of this site. As well, in the "Of Note" section take a look at those posts with an asterisk. If you're a parent and need support, look for posts in the Index about parent support or parent toolbox. In my opinion, the best book to buy, to refer to constantly and to share with members of the medical/psychiatric profession is "Sick Enough: A Guide to the Medical Complications of Eating Disorders" by Jennifer L. Gaudiani MD, CEDS, FAED. "Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture." I recommend two groups who will support you on your journey - F.E.A.S.T and the National Alliance for Eating Disorders. Both maintain websites and Facebook private groups.

Monday, November 6, 2023

An obituary for my beloved daughter

 Following my daughter's death two years ago, a brief obituary was published a few months later in our local newspaper.  I have mentioned her in this blog many times, referring to her as my family member or my daughter.  This past week, drawing upon descriptions written by many of her friends, by her brother in a tribute he wrote in a book and earlier to their classmates, and by me in a biography published elsewhere, I wrote a more comprehensive fitting obituary for her.  Many whose adult child has passed away due to a severe eating disorder will recognize traits mentioned here.  I wanted readers of my blog to partially (how can one really describe a whole person on a page or two) understand who our world lost, what her possibilities and potential were and how her anorexia and accompanying mental illnesses interfered with what she considered to be a life worth living.  

I continue to pray and advocate for those caught up in this dreadful illness.  I believe that some day a treatment program will be developed, enhanced perhaps by medications or even genetic alterations through eg something like CRISPR, that will save lives.  So many people - children, adolescents, and adults are taken by anorexia. In the meantime, the medical and psychiatric professions must continue to educate themselves, diagnose eating disorders quickly, and involve families in the care and eventual recovery of their loved ones.  Medical schools must improve their curricula to include current information about the treatment of eating disorders.   Change has taken far too long.


My daughter passed away at the age of 48 in 2021, from complications due to a severe and enduring eating disorder, persistent depression and anxiety, and other co-existing disorders.  She was preceded in death by three sets of grandparents.

 

She s survived by me (her mother), her stepfather, her father, her brother, her aunt, her stepsister and many nieces, nephews, cousins, and friends.

 

She was born in Tucson, Arizona in 1973.

 

During her early life, my daughter made significant contributions to her community and society. As a counselor at Triangle Y Ranch Camp, she played an instrumental role in guiding and nurturing young minds. Moreover, while a university student, her tenure as a Visit Supervisor for Aviva on behalf of Child Protective Services showcased her unwavering commitment to the welfare of children and families, leaving a lasting impact on those lives she touched.  Later she often reached out a helping hand to those she encountered during her hospital stays or in her daily life.

 

In her pursuit of knowledge, my daughter excelled academically. She was graduated from University High School in Tucson and furthered her education first at the University of California Santa Cruz and later at the University of Arizona from which she was graduated and majored in Psychology with a minor in Architectural Theory. Additionally, she had a strong inclination towards mathematics and business. Her insatiable thirst for learning led her to a diverse range of interests and hobbies. She found solace and joy in music, art, gardening, landscape design, crafts, reading and Asian art and literature.  Her shelves were laden with note-filled books – novels, non-fiction, poetry and design/architecture.  Her favorite book by far was The Little Prince by Antoine de Saint-Exupery, in French.

 

Following graduation my daughter completed basic combat training for the United States Army at the rank of specialist before receiving a general discharge due to illness and returning to Tucson.

 

For years afterwards she bravely pursued recovery by entering eight different residential treatment centers for extended periods of time, some more than once.  Hospitalizations for stabilization and emergency care were frequent over the years, yet she never gave up.  Only towards the end of her life when severe malnutrition led to insurmountable complications did she lose the will to live.

 

We make decisions about our life that mold who we are. My daughter did not follow a conventional course. Her journey during her thirties and forties was a difficult and lonely one.  Emotional, sensory, or neurological challenges are not chosen lives.  Those on an easier path often assume they understand these challenges and experiences well enough to recommend rigidity, punishment, or a sense of shame.  In fact, we just need to offer a far better journey: empathy, creativity, opportunity, responsibility, and dignity.  No fight, especially inner ones, should ever be lonely.

 

My daughter possessed a set of personal traits that made her truly special. Her brother and her friends and I remembered her in many ways.  She was a unique individual, vibrant and unconventional, constantly bursting with creativity, talent, and intelligence. She relished pushing boundaries and was a determined person who often made up her own mind.  Her stubbornness and determination were the driving forces behind her accomplishments. Her energy was infectious, and her sensitivity and loyalty endeared her to those around her. Loved by many, her strength, brilliance, wit, and amazing energy brightened the lives of all who had the privilege of knowing her.  She was an inspiration to her family, always offering unwavering love that will be deeply missed.

 

To my daughter, life was a canvas upon which she fearlessly painted her dreams and ambitions, leaving behind vibrant and colorful creations, often as gifts to others. May her spirit continue to inspire us all to embrace our passions and unleash our creativity, just as she did with such fervor.

 

 Her cremains were interred in Tucson in a desert setting that holds special meaning to her and her family, where her loved ones gathered to pay tribute to a woman whose courage in spite of her challenges awed us all.

 

In remembrance of her, the family requests that any donations be made to the National Alliance on Mental Illness, a grassroots mental health organization dedicated to building better lives for people affected by mental illness.

 

Let us all remember her for the extraordinary person she was, cherishing her memory and carrying her legacy forward with love and admiration.