Welcome

When I created this blog, I was "getting on" in my early sixties, hence the blog name. However, my adult daughter's eating disorder and co-occurring emotional dysregulation disorder and other co-morbidities - ongoing for about 33 years - became and was our focus as we attempted to help her get into recovery. By learning about, reflecting on, reading about, attending conferences and writing about eating and brain disorders, I created a place to blog what I've learned. I hope this blog will be of use to others, especially families of and adult sufferers themselves to help them get into recovery. I update posts from time and the update date will be present at the top of the post.

Sadly, my daughter passed away in early October 2021 mainly because her body became so malnourished that she was immunocompromised, contracted a severe infection that was not properly addressed during an earlier hospital stay the month before, and developed an overwhelming non-covid pneumonia following surgery to save her life. I believe she should have been able to receive palliative care but Arizona, our country, and even the professionals trained in the treatment of eating disorders, particularly anorexia, are not "there" yet. I address the issue of palliative care in a recent post below, initially written in November 2021. I am not a certified eating disorder specialist. I am an Expert by Experience and college-educated with a BA in Community Work with an additional certificate in a one-year program in Business Administration from the same institution.

I am passionate about all of this because, as Shakespeare wrote in The Taming of the Shrew, Act 4, Scene 3: "My tongue will tell the anger [and sadness] of my heart or else my heart, concealing it, will break. And, rather than it shall, I will be free even to the uttermost, as I please in words."[2016]

Travel Guide

If you're new to my blog, I recommend you begin on the right side and take a look at the "Of Note" offerings. Read Dr. Cynthia Bulik's recent published interview (5/4/22) "Rethinking Eating Disorders" if you want to print an easy-to-understand professional's expert opinion about anorexia for your family doctor or the therapist. [Early intervention is absolutely critical. For those whose eating disorder is categorized as entrenched or severe and enduring, read the editorial comment by Stephen Touyz and Philipa Hay for a new approach about treatment. It is possible for your loved one to recover! I have also attached a link here for additional papers on the subject of severe and entrenched eating disorders. If you are a family member or friend of an adult with an eating disorder and have been at this for awhile, I refer you to the posts within the title "Adult Eating Disorders and Recovery Tools" found in the Index on the right hand side of this site. As well, in the "Of Note" section take a look at those posts with an asterisk. If you're a parent and need support, look for posts in the Index about parent support or parent toolbox. In my opinion, the best book to buy, to refer to constantly and to share with members of the medical/psychiatric profession is "Sick Enough: A Guide to the Medical Complications of Eating Disorders" by Jennifer L. Gaudiani MD, CEDS, FAED. "Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture." I recommend two groups who will support you on your journey - F.E.A.S.T and the National Alliance for Eating Disorders. Both maintain websites and Facebook private groups.
Showing posts with label eating disorders and hyponatremia. Show all posts
Showing posts with label eating disorders and hyponatremia. Show all posts

Wednesday, October 27, 2010

Water, purging, and a serious warning based on real life experience

3/24/2019 update

I keep thinking of things that I believe others should know.  After just writing about aspartame and then water, in moderation, I remembered this.

Water is life.  Our bodies are anywhere between 55% and 78% water.  Our brains are about 85% water.  Even our bones have water.  Our blood is composed of water.  Our brains and spinal cord are bathed in a fluid based on water.  I could go on and on.

Our bodies are also complex organisms requiring just the right balance of electrolytes like calcium, sodium, magnesium and potassium, for example.  When one gets dehydrated or binges and purges or drinks too much water, this electrolyte balance goes out of whack and our bodies become susceptible to things like seizures, heart attacks, coma and kidney failure to name a few things.

Long distance runners (which I was for many years so have kept up on this) and others exercising for a long time have experienced this when they suddenly feel faint or dizzy or nauseous, pass out, quit urinating, get muscle cramps, have heart attacks, or worse, die.  Runners and those who exercise in other ways can also experience the opposite when they ingest too much plain water without enough electrolytes and glucose in the solution.  Some of the symptoms are similar, actually, and can be confusing to doctors.  This is important to those of you whose children participate in track and field, football, soccer and other sports.

For those with children with bulimia and anorexia, monitoring them becomes critical and forbidding them to exercise heavily until they reach a more stable state becomes very important.

Those with bulimia or who take laxatives purge away this electrolyte balance.  Vomiting reduces the amount of electrolytes in one part of the body so the body turns to its stores in other areas to try to regulate back to normal.  In the process, the amount of sodium, for example, in the blood stream is reduced.  When this happens, organs like the heart aren’t bathed in the appropriate balance and physiologically, the heart starts to react negatively, beating irregularly, for example.

Others water load to gain weight or to trick their bodies into believing that they are full and don’t need food.  Water loading is dangerous, too. 

Often, as many of us parents have discovered, the person with bulimia must be rushed to the hospital and given IV fluids to re-balance their electrolytes and restore their fluid levels to normal so their kidneys and other organs including their brains can function.

A danger our family discovered is something called central pontine myelinosis.
I’ve linked this so the reader can learn more details.  Basically, if the sodium levels are corrected too quickly during intravenous rehydration with an increased level of sodium in the bloodstream, the person is in danger of serious nerve/brain damage.  By some miracle, this did not happen to our family member possibly because her body had become accustomed to the fluctuations that had been occurring for years.  There is now some question about long-term effects appearing later.   The person needs to be monitored.  Note that if an individual is suffering malnutrition, like many people with eating disorders are, the body is more susceptible to this.

Make certain that the ER doctors monitor your loved one constantly and administer the IV fluid for a limited amount of time.  Don't hesitate to ask questions.