Welcome

When I created this blog, I was "getting on" in my early sixties, hence the blog name. However, my adult daughter's eating disorder and co-occurring emotional dysregulation disorder and other co-morbidities - ongoing for about 33 years - became and was our focus as we attempted to help her get into recovery. By learning about, reflecting on, reading about, attending conferences and writing about eating and brain disorders, I created a place to blog what I've learned. I hope this blog will be of use to others, especially families of and adult sufferers themselves to help them get into recovery. I update posts from time and the update date will be present at the top of the post.

Sadly, my daughter passed away in early October 2021 mainly because her body became so malnourished that she was immunocompromised, contracted a severe infection that was not properly addressed during an earlier hospital stay the month before, and developed an overwhelming non-covid pneumonia following surgery to save her life. I believe she should have been able to receive palliative care but Arizona, our country, and even the professionals trained in the treatment of eating disorders, particularly anorexia, are not "there" yet. I address the issue of palliative care in a recent post below, initially written in November 2021. I am not a certified eating disorder specialist. I am an Expert by Experience and college-educated with a BA in Community Work with an additional certificate in a one-year program in Business Administration from the same institution.

I am passionate about all of this because, as Shakespeare wrote in The Taming of the Shrew, Act 4, Scene 3: "My tongue will tell the anger [and sadness] of my heart or else my heart, concealing it, will break. And, rather than it shall, I will be free even to the uttermost, as I please in words."[2016]

Travel Guide

If you're new to my blog, I recommend you begin on the right side and take a look at the "Of Note" offerings. Read Dr. Cynthia Bulik's recent published interview (5/4/22) "Rethinking Eating Disorders" if you want to print an easy-to-understand professional's expert opinion about anorexia for your family doctor or the therapist. [Early intervention is absolutely critical. For those whose eating disorder is categorized as entrenched or severe and enduring, read the editorial comment by Stephen Touyz and Philipa Hay for a new approach about treatment. It is possible for your loved one to recover! I have also attached a link here for additional papers on the subject of severe and entrenched eating disorders. If you are a family member or friend of an adult with an eating disorder and have been at this for awhile, I refer you to the posts within the title "Adult Eating Disorders and Recovery Tools" found in the Index on the right hand side of this site. As well, in the "Of Note" section take a look at those posts with an asterisk. If you're a parent and need support, look for posts in the Index about parent support or parent toolbox. In my opinion, the best book to buy, to refer to constantly and to share with members of the medical/psychiatric profession is "Sick Enough: A Guide to the Medical Complications of Eating Disorders" by Jennifer L. Gaudiani MD, CEDS, FAED. "Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture." I recommend two groups who will support you on your journey - F.E.A.S.T and the National Alliance for Eating Disorders. Both maintain websites and Facebook private groups.

Saturday, April 16, 2011

Nothing like a nap!

This week has been wild, full of ups and downs connected with not only next steps for my loved one, but also arrangements for an extended family member who suffered a stroke almost two months ago and who lives in another state.  

The outcome in each case is to be determined as often happens, but things look promising.

At times like these, when life can get pretty unmanageable, I think of a very useful acronym:  HALT
Hungry, Angry, Lonely, Tired.  Here in the desert southwest T could also stand for "thirsty".  In fact, I just took a large glass of ice water out to my husband whose hobby is working on his car and he's been at it for a couple of hours on a rather hot afternoon here.

I, though, was tired.  After going to a meeting and then running several errands on my way home (including filling up my almost empty '03 Murano's gas tank and gasping at the total - $72. and change), I came home, had lunch, and climbed into bed.  A two hour nap was just the ticket so I could help my husband out in the garage by sorting things for Goodwill.  It has been a productive afternoon.

Back to the fill up for a moment.  As I stood there by my car looking at the receipt (I got 19 gallons, the Murano needs premium, and I had been running on air for about a mile), a woman who had just filled up her gas tank nearby remarked, "I'm going to frame mine.  This is the most I've ever spent on gas."

I guess there's a metaphor there.  My car was empty and needed gasoline; I was empty and needed a nap.

Sunday, April 10, 2011

Thoughts on being a Mom

Today's New York Times carries a piece in the Modern Love column of the Sunday Styles section (Sunday, April 10, 2011, p. 6) titled, "Sharing the Shame After My Arrest."  The piece, by Brooke Rinehart, tells the story of a young woman very in love with her husband, a young enterprising man, who betrays her.  She returns home to her parents who love her and support her through the agony of the next ninety days.

My daughter's birthday was last month and mother's day is approaching.  Yesterday in a meeting I shared how difficult it has been for me to somehow construct a boundary between me and the woman who, as a baby, nursed at my breast and delighted my heart.  As I've also shared not only here but also in an IAEDP meeting with a bunch of therapists who treat those with eating disorders, I also sought therapy and attended classes and  gradually came to understand that I didn't cause my daughter's eating disorder.  The situation we all lived in may have contributed to its emergence, but genetically there it was.  As happened to many moms, I was blamed in an "earlier time" and carried guilt around like a wet blanket until I began to learn how to accept the past, understand what was and is going on, study the science of it, and move forward.

So, reading this piece in the New York Times today actually strengthened me, the mom who was declared in 2004 to be without boundaries and too enmeshed in the situation affecting my daughter.  

The writer shared that she could not lie in her bed in her old bedroom because it held too many memories.  I could relate to that.  After my divorce, the best thing I ever did was to sell my house and move to a different one.  And, it was a wonderful house but in our experience it held too many sad memories.

So Brooke slept on the couch for ninety days......  And along side her, in the love seat, slept her mother.  Brooke didn't ask her too; she just did.  Brooke writes, "At her lowest point, my mother spent a full day on the laundry room floor, slumped against the washing machine, unable to move.  The severity of my situation had consumed her.  Her heart had broken so severely that her body and mind broke, too."

Yes.

She writes that her mother sought therapy for a number of reasons, not the least of which was to "stop making this about her."  I so understand that.  I was consumed by the agony of watching what was happening with my daughter.  As I said to the group of therapists, "How could I not be enmeshed?"  Yet, this was and is not about me.  Yet, from another perspective, it is.  And, I had to learn how to detach with love in order to be a better advocate for her.

Time has past since yet there's still a part of my heart that finds it so hard to accept what has happened to this joyous, creative, and intelligent little girl.  She's in another rough patch and I know she can make it through to the other side of this -- after all, one has to go through something rather than skirt it.  She has the support; she needs to do this.

So can I.  As my little plaque says, "Life is all about how you handle Plan B."



Tuesday, April 5, 2011

Thoughts about running and being....healthy

Reading a post by Carrie on her Ed Bites blog about mind vs body and then seeing a graphic portrait of a skeleton running on a treadmill published by CBS the other day (I am not going to link to it as I was shocked by it), reminded me of all the times one of my adult children admonished me for continuing to buy my loved one a pair of running shoes as one present for Christmas and another for birthday. I just didn't "get it."

My epiphany on this issue came one or two months ago when I realized that I was an enabler by providing the shoes.  After all, my loved one loves to run and go on long walk-abouts, as we call them.  I figured (incorrectly; see most recent post) that my loved one was running for the exact reasons that I love to run and now walk.  Actually, I am sure that part of her does for the very reasons I do -- incorporating what can be a healthy habit into one's day to get some fresh air and sunshine as well as to get the heart going, the lungs expanding, the hormonal systems moving, etc.

But running came into our lives differently. 

As I've written here on my blog, my parents always encouraged sports and outdoor activities.  We lived overseas in the tropics/subtropics for most of my growing up so outdoor sports happened year round.  Sports was a part of my life and part of my during school hours life, too.  I raised my children the same way.  Living in Tucson with its wonderful year round weather helps that. 

But I did not "discover" long distance running until I saw a friend of mine running around the neighborhood and asked her a few questions about it.  I learned that it was an activity I could pursue early in the morning before my children woke up and needed to get ready for school.  I came to love it very quickly for reasons I've also written about.  But, for me, most importantly I wanted to keep doing it and I realized that to do so, I needed to be smart about it.  Having a medical background (nursing student) and a keen interest in physiology helped me realize I needed to eat well.  I also had just begun my own recovery from bulimia and soon learned that putting a few more pounds on did wonders for me in terms of strength and in terms of fighting my frequent bouts with bronchitis.  In fact, I learned as time went on that as soon as I went under what was still a very healthy weight for me (this happened when I was stressed), I'd get sick with bronchitis or a cold.  It was my body's warning system going into action and I heeded it.  My doctor was very happy about the change, too, and encouraged me to aim for a weight that he felt was even healthier.  I did that. And, I felt even better.

My loved one, however, was introduced to running while very young - nine years old.  Running became a part of her life which I thought was a good thing.  However, as she reached her mid-teens, exercise became one of the ways she dealt with anxiety and later assisted her along into anorexia.  She continues to use it as a tool to keep herself there or get herself back there.  She also incorporated what we called the walk-abouts.  These were very long walks around town to avoid binging and purging and other behaviors.

Each time she has been released from a residential facility or hospital, she has returned to running/walking even when her electrolytes were horribly skewed and/or her weight was low enough that she reported people would yell out their car window at her to "gain some weight."  She would come home very upset by these remarks yet could not connect the dots to see why others were reacting to her physical looks.  She just didn't see it. 

Now I have gotten beyond my denial to understand that she is incapable, at this point, of using running for just a healthy purpose.  She still craves it.  One of her hurdles will be to understand the difference.  My role  is to set a boundary by not purchasing her running shoes and by standing firm with her team and asking her to not run and not walk long distances until she figures all of this out.

As a former runner (I walk now as I have arthritis in my neck), I do remember at times getting injured with tendonitis like symptoms and experiencing what is called "withdrawal" because, let's face it, running and or walking/hiking for those who love it, feels good.  I get out, away from cares for awhile, I can think things through without being disturbed by the phone, or I can just simply enjoy the sounds of nature. 

For those who find that exercise can undermine them, and are cognizant of it (like Carrie), stopping for awhile is necessary.

All in the Family......... and elsewhere

I knew I should not have picked up the Wall Street Journal before my walk this morning.  I love this section and usually learn so much in a few short pages.  The temperature's quite cool  today after a terribly hot week last week and I've opened all the doors as well as the one to the screened porch.  Our cat is in heaven and hasn't come back into the house for a couple of hours now.

As usual, the Personal Journal's Health and Wellness section that appears on Tuesdays is crammed with interesting information about Sleeping Types (are you a short sleeper?), other options besides bypass surgery, food addictions (I hope folks pay attention to this study because as I've said previously here, I do think there's a genetic link to all of this), and especially the article titled, "Do You Get an 'A' in Personality?" 

In an earlier post I talked about Family Week at a residential eating disorder facility, communication,  and the value of the exercise that uses Gary Chapman's book, The Five Love Languages.  Along comes an article that delves even deeper into the entire subject of co-existence and family relationships.  

One of the neat things about people is we can be related and yet be so different!  One family member might crave peace and quiet while another just loves to crank up the latest rap recording.  (The solution here might be headphones.)  Another might want everything to be "just so" while a supervisor might find "organized chaos" to be the answer in his/her office.  I'll never forget one summer when, having not too much to do while my three professors were on vacation, I "straightened up" one of their offices, placing books in alphabetical order and so on.  Well, although I did not get fired, I did get a dressing down.  Before I did this, he knew exactly where in each stack or where on the desk or table a specific article or book was related to a paper he was working on.  When I was done, his entire orderly (so to speak) world was upside down.

In this latest article, Elizabeth Bernstein grabbed this reader by noting in the first paragraph, "In the never-ending quest to help people co-exist peacefully with their spouses, children, siblings and in-laws, therapists are turning to tools used to assess the psychological stability of pilots, police officers and nuclear-power plant operators: personality tests."

Bernstein focuses on the family, especially one with a teenage daughter who moved back into the household and who has an entirely different lifestyle from that of her parents, who are goal-oriented - mom's an accounting consultant and dad's an attorney.  Their daughter, Maggie, "....is an introvert, a feeler who craves harmony and needs time and freedom to discover what she wants to do."

Bernstein then notes that mom, after she and her husband and Maggie took the test and heard the results, said, "It helped us see that she is a different person and will have a different path."

Key words.  Important words.  Our children are different people on different paths.   

I think this article is especially important for families whose son or daughter (or both or all) struggle with perfectionism, anxiety, and an eating disorder.  As many specialists will note, particularly those who are up-to-date in the eating disorder field, for progress to be made in a family whose member is struggling with an eating disorder, there needs to be a calm and nourishing (pun intended) environment.  If the family members do not understand each other on a much deeper level, it's more difficult to create that environment.

For years this tool has been used in the workplace.  Perhaps the MBTI could be considered another window into the activities of a family, now that family members are increasingly -- thank goodness -- being accepted as members of the team.

Time for my walk!