Welcome

When I created this blog, I was "getting on" in my early sixties, hence the blog name. However, my adult daughter's eating disorder and co-occurring emotional dysregulation disorder and other co-morbidities - ongoing for about 33 years - became and was our focus as we attempted to help her get into recovery. By learning about, reflecting on, reading about, attending conferences and writing about eating and brain disorders, I created a place to blog what I've learned. I hope this blog will be of use to others, especially families of and adult sufferers themselves to help them get into recovery. I update posts from time and the update date will be present at the top of the post.

Sadly, my daughter passed away in early October 2021 mainly because her body became so malnourished that she was immunocompromised, contracted a severe infection that was not properly addressed during an earlier hospital stay the month before, and developed an overwhelming non-covid pneumonia following surgery to save her life. I believe she should have been able to receive palliative care but Arizona, our country, and even the professionals trained in the treatment of eating disorders, particularly anorexia, are not "there" yet. I address the issue of palliative care in a recent post below, initially written in November 2021. I am not a certified eating disorder specialist. I am an Expert by Experience and college-educated with a BA in Community Work with an additional certificate in a one-year program in Business Administration from the same institution.

I am passionate about all of this because, as Shakespeare wrote in The Taming of the Shrew, Act 4, Scene 3: "My tongue will tell the anger [and sadness] of my heart or else my heart, concealing it, will break. And, rather than it shall, I will be free even to the uttermost, as I please in words."[2016]

Travel Guide

If you're new to my blog, I recommend you begin on the right side and take a look at the "Of Note" offerings. Read Dr. Cynthia Bulik's recent published interview (5/4/22) "Rethinking Eating Disorders" if you want to print an easy-to-understand professional's expert opinion about anorexia for your family doctor or the therapist. [Early intervention is absolutely critical. For those whose eating disorder is categorized as entrenched or severe and enduring, read the editorial comment by Stephen Touyz and Philipa Hay for a new approach about treatment. It is possible for your loved one to recover! I have also attached a link here for additional papers on the subject of severe and entrenched eating disorders. If you are a family member or friend of an adult with an eating disorder and have been at this for awhile, I refer you to the posts within the title "Adult Eating Disorders and Recovery Tools" found in the Index on the right hand side of this site. As well, in the "Of Note" section take a look at those posts with an asterisk. If you're a parent and need support, look for posts in the Index about parent support or parent toolbox. In my opinion, the best book to buy, to refer to constantly and to share with members of the medical/psychiatric profession is "Sick Enough: A Guide to the Medical Complications of Eating Disorders" by Jennifer L. Gaudiani MD, CEDS, FAED. "Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture." I recommend two groups who will support you on your journey - F.E.A.S.T and the National Alliance for Eating Disorders. Both maintain websites and Facebook private groups.

Tuesday, August 9, 2011

Guest Post by Marjie Ruth - Instant Gratification



Mindfulness is the aware, balanced acceptance of the present experience.
It isn't more complicated than that.
It is opening to or receiving the present moment, pleasant or unpleasant,
just as it is, without either clinging to it or rejecting it.
~ Sylvia Boorstein


Last week I wrote what is intended to be the first of a 3 part series of emails about what I see as three very common trends in our current thinking or societal temperament. Last week's email dealt with our tendency towards simplification and over-simplification in thinking and reasoning. Like most things, a certain amount of simplification can be a good thing for helping with clarity and brevity. But when over done or misused, it can become a faulty pattern of reasoning that fails to account for complete facts, necessary detail, and/ or important details. 

This week I want to address the pervasiveness of the desire for instant gratification. Now, I most certainly realize that I'm hardly expressing anything new with this topic. There's a reason why today's young adults are called "The Sesame Street Generation" by some educators. While Bert & Ernie and the gang acted as a highly entertaining and educational entourage for this group when they were toddlers, a side affect of the process was the conditioning to short snippets of entertainment that were constantly changing. This, along with many other forms of electronic entertainment, helped to usher in a mindset with an attention span that is sometimes akin to that of a gnat. While older age folks find much of today's media to be jarring to the point of being uncomfortable, tots to teens these days are totally at home with conversations limited to 60 characters at a pop, a barrage of brief videos, shreds of info from short feeds, and the constantly available and changing entertainment of the internet and all it gives access to. Need information? Grab it in an instant from Google or Bing or any number of super fast search engines. Computers have culled our threshold for patience down to a nano second, it seems. See something you want? Order it with a simple click, and request delivery overnight. Remember when we used to wait for days for a letter to come in the mail? Hah! Now you've dated yourself 'cause that's a concept anyone under 30 probably can't relate to at all. How about the days before microwaves & cell phones? Why it even took us a lot longer to dial on a rotary phone than most 25-year-olds can comprehend, let alone tolerate. 

With everything moving so much faster, we've come to accept it as the norm that all things should happen with the ease of high speed. Because news now travels farther and faster than ever before, we can barely begin to understand how different the world is for our children than it was for us at that age. What, for them, will constitute the simpler times? "Hey, remember life before 4G? Man, the days of 2G were so slooooow! Now that was mellow." While we can't all be over night multi-millionaires thanks to a Lotto win, there are far too many who seem to expect that they should be able to cash in young and easily. 

"Ah, but wait", you might be saying, "I'm not that young. Yes, I want my computer to be fast, but I still appreciate the fact that some things have to be earned over time and that good things are worth waiting for." And I completely commiserate. But just because we haven't grown up as entirely submerged in the culture of "need for speed", doesn't mean we haven't become infected through association. Compare yourself to your parents, and you'll see what I mean. And while we may be relatively balanced in our desire for expecting some things more immediately while still retaining an appreciation for the benefit of long term goals and pursuits, there is an area where we may more often find ourselves wanting results and wanting them NOW!

And--as you might be guessing considering the forum for this epistle--those occasions where we may be willing to admit that we crave instant gratification, just might be when it concerns our loved ones and their recovery from their ED. No, of course you don't actually expect he or she to get over it in the blink of an eye. You're not that irrational. (No, irrational is what they are.) But aren't there moments in time when you have honestly hoped that a corner had been turned, a light bulb had gone on, and reason had prevailed? Maybe it was after an especially good day. Or it might have been because of a better phone conversation. Or maybe it was following a course of treatment, a session of therapy, or a period of stay at a treatment center. Have you never thought that, well, it's just ridiculous to drag this out? Can't she see the insanity of even one more hour of such behavior and want to get past it now, right now? Haven't you maybe, just maybe, wanted so badly to be able to say just the words that would make sense prevail, the madness end, the healing be real and complete...in an instant...right now...or is it only me?

Oh yes, I know all too well that there are no magic words--there is no instant healing, but that doesn't make me stop craving it deep down inside. Like a tide that ebbs and flows, it's pull is still there, washing up on the emotional beach that is some days eroding beneath my feet. But to give into that desire is to ultimately give in to despair. I choose to step back from the rip tide before its strength gathers and pulls me out to sea. No, I step back. The allure of instant gratification is so, so strong in our culture. But like fools gold, it's reward is not always worth the risk. No, true treasures are most often discovered after long painstaking searches. Dedication, self denial, and perseverance may sound to some like outdated notions. But to those of us who know that our loved one may need lots of time to find their way through the maze that is an addiction, they are words to live and hope by.  

The slogan may be "Just do it", but in reality that's often overly simplistic, a rally cry promoting instant gratification. 
Perhaps for us, the better current phrase to hang on to is: Now wait for it...wait for it...

Still trying to be patient,
Marjie Ruth
-or- my newer email address: MarjieRuth1@gmail.com

If you are receiving this email directly from me, it's because at some time you asked to be on my super confidential email list. If this is being forwarded to you, that's fine too. And you may feel free to send it on so long as you include the whole email, even this l'il old post script. That way your friends will know who's responsible for these ramblings. Thanks.

Tuesday, August 2, 2011

Borderline Personality Disorder - another biologically based brain disorder?

For those of you whose loved ones with eating disorders have been diagnosed with the accompanying mental illness Borderline Personality Disorder (BPD), TARA is an organization that offers information and assistance to families.   TARA - Treatment and Research Advancements/National Association for Personality Disorder.

As readers of this blog know,  I firmly believe but of course do not know (yet) that BPD will someday (hopefully soon) be recognized as a brain disorder of biological origin, especially given this article published May 26, 2011 in the New England Journal of Medicine by John Gunderson, M.D. 


This research by Stanley Siever is hugely important, too, and hopefully will lead those who are knowledgeable about BPD away from the early emotional experiences blaming (the mom/family thing again) and more into understanding that the basis of this disorder may instead have to do with neuropeptides like oxytocin and vasopressin.

I had not been familiar with TARA, but noticed a link provided by the Cleveland Center for Eating Disorders.  I now intend to learn more about this organization. 

Meanwhile, here's TARA's link to some other helpful publications including the one mentioned above by Dr. Gunderson.
 

Research Update: Genetics and Eating Disorders

With thanks to Carrie and her weekly blog post specifically about news/research on eating disorders, here's a news release on work led by Cinnamon Bloss, Ph.D. of  University of California, San Diego’s Eating Disorder Treatment and Research Program.  


The conclusion from the study published in the journal Neuropsychopharmcology points to the probability that ....

"An international team of scientists has identified possible genetic variations that could influence a patient’s recovery from the diseases.
Their findings may provide new insights into development of effective interventions for the most treatment-resistant patients with these disorders."






     

New Book: A Collaborative Approach to Eating Disorders

Edited by June Alexander and Dr. Janet Treasure, A Collaborative Approach to Eating Disorders (Routledge, August 31, 2011) will be an important addition to the growing library on family based treatment.

Taking directly from the information provided by the publisher, topics include:
  • current research including genetic factors, socio-cultural influences and early intervention
  • clinical applications such as family based dialectical and cognitive behavioural treatments
  • treatment developments for both adolescents and adults with a range of eating disorders
  • building collaborative alliances at all levels for treatment and ongoing recovery. 
June Alexander recently released a book chronicling her own experience - A Girl Called Tim.   Dr. Janet Treasure is a pivotal figure in the study of eating disorders and behavior.  Her work in conjunction with the Maudsley Hospital in the UK has opened the door to a new approach to the treatment of eating disorders.  You can learn more about her work here during an interview on the BBC.  She presented at the NEDA conference in New York City last Fall.

I look forward to reading the book!