Welcome

When I created this blog, I was "getting on" in my early sixties, hence the blog name. However, my adult daughter's eating disorder and co-occurring emotional dysregulation disorder and other co-morbidities - ongoing for about 33 years - became and was our focus as we attempted to help her get into recovery. By learning about, reflecting on, reading about, attending conferences and writing about eating and brain disorders, I created a place to blog what I've learned. I hope this blog will be of use to others, especially families of and adult sufferers themselves to help them get into recovery. I update posts from time and the update date will be present at the top of the post.

Sadly, my daughter passed away in early October 2021 mainly because her body became so malnourished that she was immunocompromised, contracted a severe infection that was not properly addressed during an earlier hospital stay the month before, and developed an overwhelming non-covid pneumonia following surgery to save her life. I believe she should have been able to receive palliative care but Arizona, our country, and even the professionals trained in the treatment of eating disorders, particularly anorexia, are not "there" yet. I address the issue of palliative care in a recent post below, initially written in November 2021. I am not a certified eating disorder specialist. I am an Expert by Experience and college-educated with a BA in Community Work with an additional certificate in a one-year program in Business Administration from the same institution.

I am passionate about all of this because, as Shakespeare wrote in The Taming of the Shrew, Act 4, Scene 3: "My tongue will tell the anger [and sadness] of my heart or else my heart, concealing it, will break. And, rather than it shall, I will be free even to the uttermost, as I please in words."[2016]

Travel Guide

If you're new to my blog, I recommend you begin on the right side and take a look at the "Of Note" offerings. Read Dr. Cynthia Bulik's recent published interview (5/4/22) "Rethinking Eating Disorders" if you want to print an easy-to-understand professional's expert opinion about anorexia for your family doctor or the therapist. [Early intervention is absolutely critical. For those whose eating disorder is categorized as entrenched or severe and enduring, read the editorial comment by Stephen Touyz and Philipa Hay for a new approach about treatment. It is possible for your loved one to recover! I have also attached a link here for additional papers on the subject of severe and entrenched eating disorders. If you are a family member or friend of an adult with an eating disorder and have been at this for awhile, I refer you to the posts within the title "Adult Eating Disorders and Recovery Tools" found in the Index on the right hand side of this site. As well, in the "Of Note" section take a look at those posts with an asterisk. If you're a parent and need support, look for posts in the Index about parent support or parent toolbox. In my opinion, the best book to buy, to refer to constantly and to share with members of the medical/psychiatric profession is "Sick Enough: A Guide to the Medical Complications of Eating Disorders" by Jennifer L. Gaudiani MD, CEDS, FAED. "Dr. Gaudiani aims to improve medical diagnosis and treatment, motivate recovery, and validate the lived experiences of individuals of all body shapes and sizes, while firmly rejecting dieting culture." I recommend two groups who will support you on your journey - F.E.A.S.T and the National Alliance for Eating Disorders. Both maintain websites and Facebook private groups.

Thursday, February 23, 2012

Is Food Medicine?

I've often been told and then tell my daughter that "food is medicine."

Is food medicine?

Would it be possible to persuade the Powers That Be that for someone with an eating disorder, FOOD IS MEDICINE?

And, if that is true, then would that mean a medical doctor could prescribe food?

And, if a medical doctor could write a prescription for food, would this prescription be permissible for someone on government benefits (SSDI or SSI) - to go beyond the SSI allocation re the portion for food or to replace food stamps (which are permissible) with delivered food, ready to eat?

And, if permissible, could an adult with an eating disorder obtain a prescription for a local Meals on Wheels or some kind of  daily (so one would not binge on the delivery of e.g. a week's worth of food) food delivery service that provided the calories needed for recovery?

Could this food that is prescribed and delivered be tax deductible as a medical expense?

Could this be a possible solution for someone who needs this kind of service to get on the road to recovery?

So many people with eating disorders literally panic when going into a grocery store let alone buying groceries, bringing them home, putting them in the pantry, and then selecting items to prepare food.

What a great solution this might be as a first step solo!

What do you think?

NBC News segments - Boys and Men Get Eating Disorders, too

These links will introduce the idea that boys and men get eating disorders, too.
Eating disorders do not discriminate.  The eating disorder is like a deadly virus, intent on overwhelming and killing anyone it infects.  An eating disorder, however, is a serious mental illness - a biological brain disorder -  and is, in fact, the deadliest of all mental illnesses.

If you suspect that your son or daughter has an eating disorder, run - do not walk - to your family doctor.  Take this booklet published by the Academy of Eating Disorders with you. You can download it and print it.  Insist that the examination of your child include what is written here.

If the tentative diagnosis is an eating disorder, know that this is a medical emergency requiring emergency attention.  If your family doctor does not know how to treat it, then find one who does. 

Thursday, January 26, 2012

Someday Melissa - the film

Less than two weeks ago I ordered the DVD Someday Melissa. The film arrived in our po box today, I brought it home, sat down, and watched it.

I ordered the film for two reasons: one, to support the work of Judy Avrin and the nonprofit created in her daughter's name; and the second, to share this with people who simply cannot "get" what it is like to have an eating disorder, in this case bulimia.

You can read more about Someday Melissa here.
I think what struck me about the film is how accurately it depicted the illness (I fought it for 15 years with a detour to anorexia for four of them and have been in recovery for more than 35 years) and what it can do to the individual who gets mired in it. Viewers are given the opportunity to meet Melissa as a baby and to grow up with her; to learn about her struggles and her questions; to listen to her beautiful yet wrenching prose; and to watch a girl turn into a young woman whose body truly does not betray that she has an eating disorder at all unless a person knew about her illness. One does not see a wasting body - the typical thought that people have when they hear the words eating disorder because anorexia, rather than bulimia, is so closely identified with the words eating disorder.

Many in the medical field still do not understand how deadly bulimia can be.

The viewer also meets Melissa's family and close friends and what they saw and felt. There were certain elements that troubled me but perhaps those were more about me and my experience and what I've seen than about the film.

I won't give away any more of the film. I think it is and will be an important tool to educate the public -- and ED professionals -- about bulimia. Some people make it through to the other side; others, like Melissa, do not. Some people start with bulimia and then move on to anorexia, as well. Others the reverse.

An eating disorder is a medical emergency.

I highly recommend a viewing if you are given the opportunity.

Two weeks of H#!$ and Modeling/ Mirroring

I've attended several Family Weeks at this point while my daughter has continued her journey with the evil ED.

Each time, as I've written before, I've learned valuable tools as well as lessons on how to continue on the journey with my daughter without collapsing in the process.  There are times, like last night, when I've been an emotional wreck after witnessing what can only be described as a complete meltdown -- adult version -- comparable to (for those of you who are parents) a two and a half year old's temper tantrum.  By saying this, I am not in any way attempting to belittle the meaning of the adult's version; rather, trying to illustrate what happened.

One of the lessons I learned and need to remind myself at this point is that when I visit I need to put on a suit of armour that permits me to give all the love and support I can without melting in the process in front of her.  An underlying technique is called "modeling" or providing an example of behavior in the direst of circumstances so that she will hopefully adopt or "mirror"  that behavior.  Our children, from birth, look to us to see how we handle circumstances, both easy and terribly difficult.  They learn to behave as we do.  Many parents can recognize themselves in some of the behaviors and statements their children make on down the road.  Or children can withdraw, because they cannot fathom themselves being able to behave in a way that does not make sense to them.

I am certain that we three kids, while traveling to India back in the 1950's for example, would have panicked if my mother hadn't kept cool, calm and collected (she years later said perhaps she was just in shock and just hung on) when we disembarked from our plane in the Middle East and had to walk through a gauntlet of soldiers pointing their weapons at us.  I do remember this.  Our passports were taken from us and all the passengers were held in a room until our plane was refueled and we were finally on our way again.

Last week I did break down following a hearing and wish I hadn't but I was frustrated more than anything else by the conclusion that a "danger to self" was not included in the description.  Last night, I was able to remain calm until I had left the building and was held by another of the mothers who was visiting that evening.

We do set an example with every one of our behaviors.  The old saying, "do as I say and not as I do" needs to be thrown out the window because walking one's talk makes a difference.  This is why family therapy can be so darned valuable.  Families learn how to behave in the face of the monster eating disorder.  Families learn when they need to take time outs and how to do that.  Families need to learn how to decline (what to say and how to say it) to visit if they simply cannot handle the emotions at that time while present with their loved ones.  I do not mean one needs to be cold.  Far from it.  I got down on the floor, too, and stroked her back.  When I saw that wasn't working, I knew I needed to leave and told her I loved her and would report what was going on to her team.
Being a parent of a person with an eating disorder is really, really difficult.  My heart goes out to all parents who might read this note.  Hang in there.  Research is opening doors and journals like the International Journal of Eating Disorders and the European Eating Disorders Review are making some of  their publications and/or articles available to download and pass along to therapists and other team members to bring them up to date.